Boy, did I surprise myself today. I recently got a prescription for a power wheelchair from my neuro. My world has been shrinking and I have started to notice it. So, today as I was driving to work, I realized that if I do get this chair, I will be able to go outside at school again. It has been a long time since I could safely walk out there. Our old school grounds are very uneven and gopher holes abound. The driveway is gravel, and any variations in terrain are hard for me. As I reflected on this possibility, I was surprised to see I started to cry. Imagine, driving to work and wiping tears. When I went in the building, people saw my red eyes and asked about what was wrong. It was so weird to say that nothing was wrong, it was a good thing that made me cry.
I don’t think I have given a lot of thought to how much has changed in the last ten years for me. It creeps up an inch at a time. MS sux!
So, next week, we drive to Spokane and start the process. If I get insurance approval, it will be done. I find it unimaginable to celebrate getting a wheelchair, but I think I will. And I also plan to take it to school for the spring and go OUTSIDE for recess and my students’ PE. Keeping my fingers crossed!
3 comments:
Dearest Sunny,
The sadness of recovered joy that once was lost is the stuff of humanity that fills volumes of poetry and prose.
Your heart deserves all the joy there is. You work so hard and suffer the disorganized place called school. You take care of the family and tolerate all our foibles, follies and foolishness. All of this you do with great love.
I want to be there as your heart soars and your dreams come true.
I love you,
Mossy
Hi Sunny!
I'm excited to hear about your new chair! My friend at work (also with MS) got one and WOW did her world expand. I hope it all works out with the insurance.
In re: your question on my blog about tattoos. They do not age well. Left alone, they fade over time, and need to be touched up. The old ones I've seen that are not touched up don't look great; that combined with the aging of skin makes me think my tattoos won't look great when I'm 80.
My hope is that I won't give a crap. ;-)
All the best,
kate
Sunny,
My name is Anne and I've just been browsing "multiple sclerosis" blogs. I am a 26 year old new graduate nurse, and I was diagnosed with MS two years ago. I was wondering if you'd be willing to tell me how MS has affected your work as a nurse -- do you have any advice?
I'm sorry for the sucky day. I have those too.
Take care,
Anne
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